https://www.alopeciaireland.ie/news daily 0.75 2022-02-25 https://www.alopeciaireland.ie/news/signposts-to-services monthly 0.5 2022-02-25 https://www.alopeciaireland.ie/news/hair-systems monthly 0.5 2021-12-17 https://www.alopeciaireland.ie/news/recycling-wigs monthly 0.5 2021-11-13 https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/1636659598084-FOOBK1ZJH6VNYXBAWU46/IMG_20210609_103640.jpg Q&A... - A little bit of giggle from Deirdre, one of our readers... https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/1636659615169-1HIPR9ICKN2UW5CN5GPR/IMG_20210617_174009.jpg Q&A... - A little bit of giggle from Deirdre, one of our readers... https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/1636659635413-XKC0367PGXKTE0WY81NQ/IMG_20210701_140442.jpg Q&A... - A little bit of giggle from Deirdre, one of our readers... https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/1636659624738-RERNSJJXKVNBORW1AAQT/IMG_20210703_173144.jpg Q&A... - A little bit of giggle from Deirdre, one of our readers... https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/1636659641491-RFW1U2C6V2F0AT7WB4BH/IMG_20210719_172713.jpg Q&A... - A little bit of giggle from Deirdre, one of our readers... https://www.alopeciaireland.ie/news/why-deserts-matter-too-mhm5z monthly 0.5 2021-11-17 https://www.alopeciaireland.ie/news/new-hope-in-old-appalachia-yxsg8 monthly 0.5 2021-11-11 https://www.alopeciaireland.ie/about daily 0.75 2022-04-18 https://www.alopeciaireland.ie/paddy daily 0.75 2021-11-11 https://www.alopeciaireland.ie/latest daily 0.75 2021-11-17 https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/6f4cddd0-caef-4469-9a34-e95440005c88/AUK_Blog_1.png Latest News https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/00e056fb-fa4f-49af-9ce8-62deefb123c8/Wigs.png Latest News https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/b246aa72-0469-4730-9722-19a55bf2a37f/Newstalk_logo.png Latest News - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/a321890e-2d88-4cc6-9eec-9c34ff847e84/Melanie+Hoskin.png Latest News - Make it stand out Radio interview on 7th April 2017 - Mel’s Life https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/40ee911f-9e11-4be5-9131-b8794cc3af7a/BBC+Blas+Karen+Dempsey.png Latest News https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/8e8aafc5-78d0-4cf6-a76a-3bd56c89dc13/Liz_Shiel.png Latest News - Make it stand out Liz Shiel on TV3's Morning Show discussing how she has chosen to cope with alopecia universalis (complete loss of all body hair). https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/af67c3c9-0637-4851-8a88-20d225656b16/JeanRowan.png Latest News - Make it stand out Actress and model, Amber Jean Rowan talks to Ryan about discovering she had alopecia as a teenager and details her attempts to hide her bald patches. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/29264e73-d6a6-4e83-ba23-7078ca36c745/Bernadette.png Latest News - Make it stand out Bernadette McCarthy on TV3's Morning Show discussing alopecia universalis. https://www.alopeciaireland.ie/support daily 0.75 2024-11-26 https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/a4b2f724-0414-4491-95e5-65e700cec5c7/Shedding.png Support Groups and Helpful Links - Make it stand out In this short documentary ‘Shedding’, three individuals talk about alopecia and the ways it has impacted on their lives. We hope the film will reach people far and wide to help raise awareness of alopecia. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/2ca805ba-5b0a-43b3-88aa-ee6876b97b2b/peer_support.jpg Support Groups and Helpful Links - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/7f7f9714-2ba2-44f1-b6d2-04f69a7db1c1/Alopecia+UK+new.png Support Groups and Helpful Links - Make it stand out Working to improve the lives of those affected by Alopecia https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/88dbf26a-ba9c-4bbd-9aba-22aa06768b80/NAAF-main-logo.png Support Groups and Helpful Links - Make it stand out A community offering mentoring, advocacy, support and advice. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/908eba8d-3cf8-4085-9ea8-0a24bed35739/Alopecia+World.png Support Groups and Helpful Links - Make it stand out An international forum offering photos, videos, blogs and support to all members. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/e6768b76-6f4a-4d50-8665-6ece21ca9ce7/YouTube.png Support Groups and Helpful Links - Make it stand out Part 1 Afternoon Express focuses on Alopecia Areata. In advance of Alopecia Awareness Month, the programme features schoolteacher Inge Palvie, and radio personality Kelly Pearce, both Alopecia Warriors – as they share their stories and encourage others who are in the same boat. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/e6768b76-6f4a-4d50-8665-6ece21ca9ce7/YouTube.png Support Groups and Helpful Links - Make it stand out Part 2 Afternoon Express focuses on Alopecia Areata. In advance of Alopecia Awareness Month, the programme features schoolteacher Inge Palvie, and radio personality Kelly Pearce, both Alopecia Warriors – as they share their stories and encourage others who are in the same boat. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/c12b6a19-a9e0-4e83-b707-847a26f775b2/AJMC.jpg Support Groups and Helpful Links - The following AJMC® video series is being sponsored by Pfizer Inc. The speakers in these short videos are Dr Neil Minkoff, the chief medical officer of Coeus Healthcare and Consulting, Dr Natasha Mesinkovska, chief scientific officer of the National Alopecia Areata Foundation (https://www.naaf.org) and an associate professor at the University of California at Irvine, and Dr Brett King, associate professor of dermatology at the Yale University School of Medicine. https://www.alopeciaireland.ie/home daily 1.0 2025-08-27 https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/7fdcc407-c487-421f-995e-e28095f2df9f/Alopecia+Header.jpg https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/59636f9e-1a01-4b5d-a8f6-5e428a8aded3/Feedback.png Home - Prof. Desmond J. Tobin of the Charles Institute of Dermatology (UCD School of Medicine, Belfield) is asking for our help with a research project coming up. Please answer these two questions and if you are happy to take part in the research, please complete the contact information in the survey below. Click to take the survey https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/dbdd7a42-8fb8-4958-83f3-0f2c97a66ee6/Grant+for+Wigs+02.png Home - Make it stand out Grant for Wigs announced on 25 May 2022 https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/d9237282-bf69-4e3f-990d-dec143717fc0/Who_are_we.jpg Home We are a small group of committed volunteers who offer our time and experiences to help others who are on the Alopecia Areata journey. All of us are already living with Alopecia Areata. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/97eb349f-a26b-47a3-8b5d-8ea791f4424b/What_do_we_do.jpg Home We offer support through meetings, regular email updates, Facebook presence, including a specific Facebook page for children, a website with the latest alopecia related articles and research, plus an option to chat with one of us via Zoom. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/c12ed789-c2cf-4e50-b83d-4ef730d79ca5/alopeciaireland-logo.jpg Home - Check out the following on this site Support groups and helpful links Latest news News articles - Ireland News articles - International https://www.alopeciaireland.ie/home-1 daily 0.75 2021-11-10 https://images.squarespace-cdn.com/content/v1/5d3b3ed8084b6f00015405ba/1565292809235-XZT8EMYC8YNFNGLGWJKE/20140302_Trade%2B151_0503.jpg Home - Our Organization Find out about our mission, methods, and the results of our decades of advocacy. https://images.squarespace-cdn.com/content/v1/5d3b3ed8084b6f00015405ba/1565894861758-1VX9YII126C6IJKL3AQP/Aro%252BHa_0073.jpg Home - Take Action Ready to take the next step? You can become a contributor to our cause, or participate yourself. https://www.alopeciaireland.ie/latest-1 daily 0.75 2022-03-28 https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/9e3bb1cd-c9f9-4644-aaf4-18ef7b007333/P6070002.jpg News Articles - Ireland - News Articles Each week we receive news alerts for alopecia news, reviews, updates and research. We post the links for all the Irish news items on this page. https://www.alopeciaireland.ie/latest-1-1 daily 0.75 2022-05-29 https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/c7a69ba9-ebf6-4633-9be0-25f0286bd028/Joe+and+Lynne+Murphy+%282%29.jpg News Articles - International - News Articles Each week we receive news alerts for alopecia news, reviews, updates and research. We post the links for all the International news items on this page. https://www.alopeciaireland.ie/introduction daily 0.75 2022-05-28 https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/000d3730-65a2-4f41-ad68-df13df839bc6/Uncommon+All.png Introduction to our stories - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.alopeciaireland.ie/emma daily 0.75 2021-11-11 https://www.alopeciaireland.ie/ronia daily 0.75 2021-11-11 https://www.alopeciaireland.ie/lorraine daily 0.75 2021-11-11 https://www.alopeciaireland.ie/denise daily 0.75 2021-11-11 https://www.alopeciaireland.ie/diary-of-an-alopecian daily 0.75 2021-11-11 https://www.alopeciaireland.ie/laura daily 0.75 2021-11-11 https://www.alopeciaireland.ie/16-year-old-males-story daily 0.75 2021-11-11 https://www.alopeciaireland.ie/liz-sheil daily 0.75 2024-07-31 https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/dc8ce834-a1a6-4cf4-a586-063715b83f19/Liz+Shiel.jpg Liz Shiel (Founder of Alopecia Support Ireland) - Thank you for the memories I (Karen) first met Liz in March 2008 at the first Alopecia Ireland support group meeting in the Red Cow Hotel. It was the first time I had spoken to anyone with Alopecia having suffered with it for over 33years. Liz was so friendly and welcoming to everyone who attended that night. I remember coming out on a high and couldn’t wait for the next meeting. Liz always kept us up to date with any news or events that were happening to do with Alopecia and organised TV interviews raising awareness about alopecia. For a number of years we travelled to Greyabbey in Northern Ireland for weekends to meet with the support group up there. In 2010 Liz organised the first trip up with the guys who set the charity up there. This friendship continues to this day and Liz would have been sorry to hear of the recent passing of Roswyn Long, grandmother of the child who the charity was set up for. When Liz had to step down due to health reasons a few years ago the group continued to meet and still do. Liz tipped in and out when she felt up to it and joined one or two of our online meetings during COVID. We are happy to continue with Liz’s legacy of Alopecia Ireland and are here to support adults and children who are going through all forms of Alopecia. A lot of us would never have met if it wasn’t for Liz setting up this wonderful group. May Liz rest in peace. Xxx I (Paddy) first spoke with Liz in 2012, months after I lost all of my hair. I attended my first Alopecia Ireland support group meeting a few weeks after that. It was a turning point in my journey with alopecia thanks to Liz and the wonderful group of people on that committee. The COVID years interrupted our meetings but they introduced us to Zoom and now we chat with people online as well as in person. Thanks to Liz, and her commitment to raising awareness about alopecia, we are now seen beyond our hair loss. Thanks too, to Liz’s family for supporting her as she supported us. Ar dheis Dé go raibh a hanam https://www.alopeciaireland.ie/on-being-a-parent daily 0.75 2021-11-11 https://www.alopeciaireland.ie/mary-cate daily 0.75 2021-11-11 https://www.alopeciaireland.ie/take-action daily 0.75 2021-11-13 https://www.alopeciaireland.ie/signposts-to-helpful-services daily 0.75 2024-09-28 https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/ca3c7642-f46c-4d0c-8f2f-d2232259d3b7/Signposts.jpg Signposts to helpful services - Make it stand out Signposting to services… (in alphabetical order) https://www.alopeciaireland.ie/naafwebinars daily 0.75 2025-08-27 https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/e4194058-f7c3-4823-9146-3d1f11a620f1/NAAF+Webinar+Understanding+how+the+Nervous+System+Drives+the+Emotional+Impact+of+Alopecia+Areata.jpg NAAF Webinars - When Stress Takes Over Alopecia is visible. But what’s not always seen, and often not talked about is how it affects the nervous system and the emotional impact it leaves behind for both patients and caregivers. This webinar explores how alopecia areata can disrupt a person’s internal sense of safety and connection, sometimes leading to emotional shutdown, overwhelm, or withdrawal. Focusing on practical strategies and clear, science-informed guidance, this talk will help patients, caregivers, and the professionals who support them better understand the body’s stress response, and guide a return to calm, connection, and emotional steadiness. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/2c917370-6372-4909-8d7b-d4c4b6b5d11e/NAAF+Webinar+Alopecia+Areata+Treatment+Updates+and+lessons+learned.png NAAF Webinars - Alopecia areata treatment updates and lessons learned from recent clinical trials With a second FDA-approved treatment announced in 2023, there is new information to share on treatments for alopecia areata, how they work, and what we’ve learned about the disease from clinical trials. Dr. Brett King discusses these topics and answers your questions. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/cb0f4468-cf75-4af1-93bf-edcad80adb93/NAAF+Options+for+Children.png NAAF Webinars - Pediatric dermatologist Britt Craiglow, MD, presents on alopecia areata in children, including current treatment options and navigating treatment conversations with healthcare providers. The webinar and legislation refer to the USA and therefore the legislation does NOT apply to Ireland. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/50809ffc-b2c1-45a8-9bf2-a5b7c255e556/NAAF+Webinar+Maintaining+Scalp+Health+for+All.png NAAF Webinars - Maintaining Scalp Health for All This informative webinar covers comprehensive scalp care practices to help maintain a healthy scalp. Maria Hordinsky, MD, Professor of Dermatology at the University of Minnesota Medical School, explores a range of valuable tips for maintaining optimal scalp health.  Advice for wig wearers and those who do not wear wigs is covered, with discussion of the unique scalp care needs of each group. Watch and learn the tools necessary to promote and maintain the well-being of your scalp. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/5a6ec602-ac0e-46e3-a0d7-1907cbb466ff/NAAF+Webinar+Breathe+into+your+Power.jpg NAAF Webinars - Breathe Into Your Power: Empowerment Through Breathwork Join Heather Wesley for an uplifting and transformative session to empower and support you on your alopecia journey. In this webinar, we will focus on the powerful practice of breathwork to quiet your inner critic, shift from stress to trust, and create a deeper connection with yourself. Come with an open heart and leave feeling lighter, empowered, and fully capable of navigating life’s challenges with your newest self-care tool: breathwork. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/4038d4bf-9440-4d85-80af-5b301bb2dc7c/NAAF+Young+Alopecians.png NAAF Webinars - Alopecians are superheroes and Georgia Van Cuylenburg believes our young Alopecians are the Elite Squad! In this month’s webinar, we invite you to join a panel of young Alopecians in a safe and supportive space where we can talk about what it’s like to be a young person with alopecia areata - the good, not so good and the in between. Yes, this is an hour for our youngins but we invite parents and folks of all ages to join us in experiencing and celebrating our Elite Squad's tenacity, wisdom, and magic! https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/931caf28-47f2-4d1d-b4b9-2b2a3f98d9bf/NAAF+Webinar+Patient+voices.png NAAF Webinars - Patient voices: alopecia areata clinical trial experiences Have you wondered what it’s like to participate in a clinical trial? This webinar features a panel of alopecia areata community members talking about their clinical trial experiences. What factors influenced their decision to join a trial? What was participation like? How do they feel about contributing to alopecia areata treatment development? https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/c7b6b432-3a67-4541-bd04-39da3b5f81d2/NAAF+Webinar+Community+panel+discussion.png NAAF Webinars - Community panel discussion Alopecia areata affects not only the individual with hair loss, but also their family members. Watching a loved one go through this disease can be emotionally challenging and may leave family members feeling helpless. However, there are multiple ways in which family members can support those affected by alopecia areata. In this video, you will learn from community members whose loved ones have been diagnosed with or affected by an alopecia areata diagnosis. Discover what others have found most helpful as they navigate life with alopecia. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/1b04be95-1336-4b44-8c7d-9a612865332c/NAAF+Webinar+Preparing+for+Back+to+School.png NAAF Webinars - Preparing for Back to School We are pleased to inform you that the 2024 Alopecia Areata School Guide is now available. This comprehensive resource is the result of a collaborative effort involving a diverse group of volunteers who brought a wide array of skills, experiences, and perspectives to its creation. The guide aims to provide valuable support for individuals dealing with alopecia areata. Please note: the guide has helpful information but some of the options are available in the USA only https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/321642c1-cb78-4fa4-8ef3-3fe462402dcb/NAAF+Webinar+What%27s+New+in+Pediatric+Alopecia+Areata+Treatment.png NAAF Webinars - What’s new in pediatric Alopecia Areata treatment? In 2023, the FDA approved the first treatment for alopecia areata in adolescents. Pediatric dermatologist Brittany Craiglow, MD, will bring us up to date on alopecia areata in children and the current treatment landscape. Note on clinical trials: Dr. Craiglow discussed clinical trial participation in her presentation. To learn more about clinical trials, visit NAAF’s Clinical Trials and Research Studies page or click the links below for specific trials: https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/ba5d8b82-029c-4192-8d66-03723af105bc/NAAF+Webinar+Makeup+Tips+for+Alopecia.png NAAF Webinars - Makeup Tips for Alopecia: Techniques for eyebrows, eyelashes, and more! Many people with alopecia areata lose their eyelashes and eyebrows. If you are interested in learning makeup tips for creating the appearance of eyebrows and eyelashes, then this webinar is for you! Learn from a Chicago-based veteran makeup artist, Keya Trammell. Keya was diagnosed with alopecia totalis at the age of 2 and is now using her makeup skills to help the alopecia community feel confident and comfortable. Have your makeup pencils ready! https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/7fc7b2af-00e8-4f34-a295-feded9fc4b95/NAAF+Webinar+The+good+the+bad+and+the+itchy.png NAAF Webinars - When you're wearing hair pieces and drawing your own brows, it's so hard to feel and look like the "you" that everyone knows you as. It's even harder to ask for help to get it right. Amy Gibson, who has alopecia universalis, has spent 25 years helping fellow alopecia areata patients in choosing and managing the wig process along with the cosmetic challenges of hair loss. From picking your familiar style, the correct fit and the right colour, to understanding how to create the authenticity and discretion needed for peace of mind while on this journey. Eyebrows can be challenging to do on yourself, but Amy will share some great ways to make this process easier for you. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/6480f0ee-9dc9-4ae0-a274-f7d4f097cace/NAAF+Webinar+Making+Alopecia+Areata+Work+at+Work.png NAAF Webinars - Making alopecia areata work at work: My personal journey Award winning career coach, best-selling author and 2023 NAAF Conference Opening Session Speaker- Joyel Crawford shares her personal journey of navigating alopecia areata in the workplace. Despite the challenges, she turned her diagnosis into an opportunity for growth and empowerment. Through this session, she discusses how she embraced her condition, adapted professionally, and thrived in her career. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/0868f99c-7c2d-4898-8447-987a9f9e40cd/NAAF+Webinar+Alopecia+Areata+Treatment+Update+2024.png NAAF Webinars - Alopecia Areata Treatment Update 2024 With a third treatment approval for severe alopecia areata in 2024, it’s time for an update on these approved medications. Dr. Maryanne Senna, Director of the Beth Israel Lahey Health Hair Loss Center of Excellence, will discuss the latest on the current treatment landscape for alopecia areata, including what we’ve learned from the clinical trial results and navigating discussions about treatments with your dermatologist. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/4ea2073d-61cf-4ac1-8822-3c0ca753d5df/NAAF+Webinar+Alopecia+Areata+Research+Powered+By+You+How+Patient+Perspectives+Drive+Progress.jpg NAAF Webinars - Alopecia Areata Research Powered by You Have you ever been asked to fill out a survey about what it’s like to live with alopecia areata — for you or your child? When you share how this disease affects your daily life and how it makes you feel, your answers do more than just sit in a file — they become part of important research. Every story and every survey helps researchers better understand the real impact of alopecia areata. Join Dr. Arash Mostaghimi and Samantha Gregoire as they talk about their research, inspired by the alopecia areata community. They’ll explain how your experiences and voices are driving progress toward better care and a better understanding of this autoimmune disease.. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/2df88905-a817-4555-b5de-866147ba2553/NAAF+Your+questions+answered+More+on+Mnaging+the+wig+process+and+cosmetic+challenges.png NAAF Webinars - We received an overwhelming number of questions during our webinar, The Good, the Bad & the Itchy: Managing the Wig Process and Cosmetic Challenges in Alopecia Areata. This webinar answers more of your questions. If you missed the first session, tune in for new tips and techniques for wigs, eyebrows, and eyelashes. Amy, Georgia, and Kathleen will address your questions and offer the inside scoop on what has really worked for them when it comes to wigs and cosmetics. Amy and Kathleen will also share their expertise on what has helped thousands of their clients. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/64ddca99-45a1-4629-a4e0-ec7c1175801e/NAAF+Insurance.png NAAF Webinars - The complexities of health insurance coverage are often challenging to navigate. Dr. Arash Mostaghimi, Assistant Professor of Dermatology at Brigham & Women’s Hospital/Harvard Medical School will review the process of prior authorization and share best practices negotiating with insurance companies to improve timely access to treatments for alopecia areata. The webinar and legislation refer to the USA and therefore the legislation does NOT apply to Ireland. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/07da91a5-98b5-42fc-a5e7-5f4131ad9c7f/NAAF+Webinar+Identity+and+self-acceptance+with+AA.png NAAF Webinars - Identity and self-acceptance with alopecia areata: A community panel discussion Living with hair loss from alopecia areata is an integral part of identity for some individuals. For adults who developed the condition during childhood, patchy hair or no hair may be all they have ever known, while others have navigated the journey of accepting and embracing their disease after its onset later in life. In this panel conversation, community members will discuss their personal experiences with alopecia areata, explore how it has shaped their identities, and share their perspectives on the availability of new treatments. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/539bcec0-f283-401b-bebf-9f2958edf63a/NAAF+Webinar+Empowered+Choices+-+Navigating+Your+Alopecia+Areata+Journey.png NAAF Webinars - Empowered Choices: Navigating your Alopecia Areata Journey This webinar focuses on making choices while living with alopecia areata. Explore steps to boost your self-confidence and learn practical tools to simplify decision-making, leverage past experiences, and confidently celebrate your growth. Whether you’re feeling overwhelmed or aiming to refine your skills, this webinar will help you confidently make choices regarding managing appearance and identity, seeking emotional support, and adjusting lifestyle with courage and joy. Choice Assessment to be completed after the webinar: Self Reflection Worksheet Download webinar slides https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/cd33be6a-4d45-41b2-b41d-7d28a515c511/NAAF+Preparing+for+back+to+school.png NAAF Webinars - Preparing for Back to School: Insights from a Teen & Young Adult Panel Heading back to school is an exciting time, but for young people with alopecia areata, the thought of starting a new school year can be overwhelming and scary. Whether you’re headed into elementary, junior high, high school, or even college, it’s a time with lots of changes and challenges. NAAF’s Support & Education Director, Judy Williams, will join a group of young adults and teens who are living with alopecia areata to help answer all the questions you have about how they prepare for a new school year and how they survived their school years in the past. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/dd76a896-c0bd-44f1-b631-ea35a442afd1/NAAF+Webinar+Alopecia+Areata+Young+Voices+Real+Stories.png NAAF Webinars - Young Voices, Real Stories: Perspectives on living with Alopecia Areata Our panelists will openly discuss the strategies and support systems that have empowered them to navigate living with alopecia areata. They will also discuss the toughest challenges they’ve faced and the invaluable lessons they’ve learned along the way, offering insight and practical advice for others on a similar path. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/12f28fc9-705e-4685-bad3-75b20089b099/NAAF+Webinar+Identifying+Bullying+and+Standing+Up+to+it+Safely+%282%29.png NAAF Webinars - Barbara Truluck is a School Counselor at Palmer Middle School in Kennesaw, Georgia and has worked in education for 20 years. As a middle school counselor, she specializes her practice in the field of stress and anxiety management with an emphasis on teaching students stress coping skills to build resiliency. Ms. Truluck has earned specialist certifications in Leadership, Anxiety and Stress Management, and Bullying Prevention from the American School Counselor Association and is an ASIST Suicide Prevention Trainer. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/87c8981f-95f1-4253-8432-0fa05bf1848f/NAAF+Webinar+Patient+Guide+to+Clinical+Trials.png NAAF Webinars - Have you read announcements for clinical trials but don’t quite understand what they mean? Do you want to feel comfortable advocating for yourself when discussing clinical trial options with your doctor? Join us to learn about drug development including how clinical trials are planned, the phases they go through, and the role that patients play in clinical trial conduct. We will cover questions to ask your doctor, things to consider when evaluating whether to participate in a trial, and how your participation could move alopecia areata treatments closer to FDA approval. Speaker Danielle Quarles will share her expertise in this area. This presentation will focus on clinical trials for adults. Danielle Quarles, Director of Clinical Operations, Sana Biotechnology https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/690c82b9-7f1a-4c38-8d9d-fbc68f68cdb5/NAAF+Webinar+Resilience+Courage+and+Confidence.png NAAF Webinars - As part of NAAF's "You Are Not Alone: Education and Empowerment" Webinar Series, this webinar presented on 9 June 2022, works through the notions of resilience, courage and confidence and identify practical tools to become resilient, practice courage and develop confidence so we can feel good in our own skin. Join two members of the alopecia areata community, Shamsha Damani and Sofia Martinez, for this discussion. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/e094516c-40ad-42f0-bbb4-93f7f646e8f0/NAAF+Webinar+Novel+developments.png NAAF Webinars - Novel developements in treating alopecia areata Have you ever wondered how eczema, allergies, and inflammation might be linked to alopecia areata? Watch this insightful webinar with Drs. Emma Guttman and Benjamin Ungar as they discuss their significant research on alopecia areata and Type 2 inflammation, an inflammatory response linked to allergic conditions. They explain how this research has paved the way for a new clinical trial in children to investigate a potential treatment for alopecia areata. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/27a6621c-3b40-4815-9cc4-d200a608608d/NAAF+Webinar+Mental+Health+and+Living+with+Alopecia.png NAAF Webinars - Psychologist Lisa Lombard, PhD discusses the impact of alopecia areata on mental health. Dr. Lombard shares her expertise on navigating the emotions that come with a diagnosis of alopecia areata. Guided imagery and breathing exercises for stress management are also discussed. Download Lisa's slides https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/d002c247-1cd5-475c-871d-ec033c5ac4dc/NAAF+Webinar+Genetics+and+Alopecia+Areata.png NAAF Webinars - Genetics and Aloepcia Areata: What We Know Alopecia areata is believed to have a strong genetic basis. Over the past 20 years, significant advances in genetic research have led to new discoveries and important new therapies. Join Dr. Leslie Castelo-Soccio as she provides an overview of the key findings so far, summarizes the genetic methods used in these studies, and discusses why there isn’t a single genetic test for alopecia areata. She will also explore the challenges that future research still needs to address. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/9badedfd-ed31-414c-8636-2e688ff447dd/NAAF+Webinar+Integrative+medicine.png NAAF Webinars - Integrative medicine: What is it and how does it fit into alopecia areata treatment? Integrative medicine aims to bring the best from both conventional and alternative medical approaches to better meet the needs of a patient. In this webinar, learn more about integrative medicine, including what we know and what’s still being explored in complementary and alternative methods for treating alopecia areata. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/b13435d8-13b5-4bf6-ab0c-f9d443f486b9/NAAF+Webinar+Men+%26+Alopecia+Areata+-+Our+unique+experiences.png NAAF Webinars - Men & Alopecia Areata: Our unique experiences It’s time to talk about how alopecia areata affects men. Hear from a group of men to learn about some of the challenges they have faced living with this disease. This webinar will be moderated by NAAF Board member, Tyrone Folliard-Olson, and will be an honest discussion by panel members of experiences, struggles, and coping strategies – as well as answers to your questions. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/b87a67d4-8876-4e7f-91df-83eb734cfa6c/NAAF+Webinar+Alopecia+Areata+Supporting+your+Self-Esteem.png NAAF Webinars - Supporting Your Self-Esteem: Tools for Living with Alopecia Areata Alopecia areata can significantly affect mental health, with one of the most profound impacts being on self-esteem. In this webinar, we will discuss what self-esteem means, the core components to building and maintaining healthy self-esteem, and how these concepts relate to the lived experience of alopecia. During this webinar, Alison Mann mentions a helpful Core Values Exercise to support ongoing reflection, remind you of what matters most, and guide you to live more purposefully: Core-Values-Exercise. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/6b40b687-e0b1-47ec-834c-7d0c284d7a75/NAAF+Webinar+JAK+inhibitors.png NAAF Webinars - Learn more about JAK inhibitors for the treatment of alopecia areata. Dr. Maryanne Senna will explain the warning labels on JAK inhibitors, where they come from, and what is known about the risks of JAK inhibitor therapy. She will also review proper laboratory testing and other monitoring for people undergoing treatment. The main objective of this talk is to provide information and data to help support educated and evidence-based treatment decision making for people with alopecia areata. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/1265921c-5be7-47fe-9016-d8a6019d8dd3/naaf_webinar_wigs_and_insurance.jpg NAAF Webinars - Supriya Surender shares her personal hair loss experience and how she navigated the insurance world to successfully receive reimbursement for her wigs. This NAAF webinar may help in the ongoing work around financial support for all with Alopecia. We can learn from the experiences of others and work towards a positive outcome. The webinar and legislation refer to the USA and therefore the legislation does NOT apply to Ireland. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/a56ac995-158a-4505-bea7-c26241f0927f/NAAF+Webinar+Expectations+of+JAK+inhibitor+treatment.jpg NAAF Webinars - Expectations of JAK inhibitor treatment of alopecia areata The FDA approval of JAK inhibitors has significantly changed the treatment landscape for alopecia areata, offering new hope for many individuals. Whether you are currently undergoing treatment or considering initiating treatment, it’s important to know what to expect. How long does hair regrowth take? What factors influence the effectiveness of JAK inhibitors? If you do not achieve regrowth with one JAK inhibitor, might you have success with another one? Join Dr. Brett King as he dives into the latest clinical research to answer these and other frequently asked questions about treatment. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/9376e05e-5f62-4c78-8b8a-86dd0bd192dc/NAAF+Webinar+The+connection+between+allergies.png NAAF Webinars - The connection between allergies, eczema, and alopecia areata in adults and children: Implications for new treatments A large proportion of the patients who have alopecia areata also have allergic conditions like eczema, asthma, hay fever, and food allergies – among others. Or they may have close family members with similar conditions. This presentation will cover how alopecia areata and these allergic (or atopic) conditions can be related, and what this implies for treatment options. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/f0168601-bd8a-4e21-92fc-8e551df27ca1/NAAF+Webinar+Alopecia+Areata+Treatment+Update+-A+New+Future+Awaits.png NAAF Webinars - Dr. Brett King, MD, PhD, Associate Professor of Dermatology, Yale University School of Medicine presented this webinar on 13 July 2022, outlining how the advancements in our understanding of alopecia areata have led to new and emerging treatments, including the recent first-ever FDA-approved medicine for the disease. In this webinar, Dr. Brett King discuses these treatments, how they work, and the results of clinical trials, in order to provide attendees with the most up-to-date information regarding these exciting developments. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/b1eb0f29-dcc2-4515-a1f9-d829a34104ec/NAAF+Webinar+Dating+with+alopecia.png NAAF Webinars - Dating with alopecia Dating can be challenging for anyone. After an alopecia areata diagnosis, it is often scary and overwhelming. In this webinar, licensed psychotherapists, Alison Mann and Donna Astor-Lazarus, will discuss how to overcome common obstacles such as anxiety and negative body image; how to discuss alopecia, when to tell a date you wear wigs, and more! https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/03b42bc3-02d9-48b8-9d5a-979e17e3b6c6/NAAF+Turning+Alopecia+Areata+Advocacy+into+Action.png NAAF Webinars - What does it mean to be an advocate for alopecia areata? Join this webinar to hear from members of the alopecia areata community who have taken their advocacy to the next level!  Dermatologist Kristen Lo Sicco, MD,  along with founding members of the Alopecia Justice League and NAAF Legislative Advocates, Alison, Julie, and Lindsey, will talk about their advocacy work, key issues for the community, and the personal empowerment that comes from making a difference. https://images.squarespace-cdn.com/content/v1/618bfb2b000ebd2cdd3597d3/c60ae1cb-6a47-433d-86ee-30efc9bb011a/NAAF+You+are+not+alone.png NAAF Webinars - Alopecia Areata 101 What’s the difference between alopecia areata and other types of hair loss? Join Dr. Amy McMichael, Professor of Dermatology at Wake Forest School of Medicine, as she answers some commonly asked questions and provides an overview of alopecia areata and the terms used to describe it. Some myths and facts about alopecia areata will also be covered. https://www.alopeciaireland.ie/international-alopecia-day daily 0.75 2024-11-25