National and International Skin Registry Solutions CLG (NISR) is seeking an Atopic Dermatitis/Eczema patient and an Alopecia Areata patient to join the Executive Committees of two new skin registries for people living with these conditions.

What is a NISR?

NISR is a not-for-profit organisation which builds and maintains skin registries, both in Ireland and Internationally.

What is a NISR skin registry?

NISR registries are longitudinal observational studies of dermatological conditions. NISR is currently managing 5 registries, the Irish Epidermolysis Bullosa Registry, the Irish arm of the UK-Irish Atopic Eczema Systemic Therapy Registry (A-STAR), an Alopecia Areata registry (GRASS) and two Coronavirus specific registries for Alopecia and Atopic Dermatitis.

How can I become involved as a patient advocate?

NISR has two new registries which are now enrolling patients across Ireland. They are seeking an Atopic Dermatitis/Eczema patient and also an Alopecia Areata patient to join the Executive Committees of each registry. As a committee member, you will have the opportunity to provide input and advice on the delivery of registry data and ensure the voice of patients is heard throughout the life of the registry. NISR is looking for patients who are generally knowledgeable about healthcare, the patient experience and interested in research. A professional background in healthcare or research is not essential.